Patients Associations

Links to several Crigler-Najjar Associations wordwide, to the International Crigler-Najjar Group and to personal webpages of Crigler-Najjar patients.

THE CRIGLER NAJJAR ASSOCIATION (USA)

CNA / King’s Way Foundationc/o Cory Mauck
3134 Bayberry Street Witchita, Kansas 67226
e-mail: mauckc@msn.com 

 

THE CRIGLER NAJJAR ASSOCIATION (ITALY)
CI AMI Crigler-Najjar Italia Associazione Malati Iperbilirubinemici
Via Ivo Peli, 21
40033 Casalecchio di Reno (Bologna) Italy.
e-mail: info@ciami.it
Web Page: http://www.ciami.it
Facebook: https://www.facebook.com/groups/81323304194/permalink/10158130173589195/ 
Twitter:  @assoCN_ita
Youtube channel: https://www.youtube.com/channel/UC5-zEfpZI8QXSMWsh5L5u-A

 

THE CRIGLER NAJJAR ASSOCIATION (FRANCE) Associacion Française de Crigler-Najjar
8 rue Henri 92140 CLAMART (FRANCE)
e-mail: crigler-najjar@9online.fr
Web Page: http://www.crigler-najjar.fr/
Facebook: https://www.facebook.com/AssociationFrancaiseCriglerNajjar/


THE CRIGLER NAJJAR ASSOCIATION (THE NETHERLANDS)
HET NAJJAR FONDS Het Najjar Fonds Secretariaat
Oranjeweg 34 1241 XS Kortenhoef (NL)
tel: 035 - 6564121
e-mail: secretariaat@najjar.nl
Web Page: http://www.najjar.nl/

THE CRIGLER NAJJAR ASSOCIATION (SPAIN)
AESCN - Asociación Española de Síndrome de Crigler Najjar
C./ Cañada Rosal, 10 B 33519 - Asturias (Asturias)
Teléfono: 985 724 832
e-mail: laplazacorreo@yahoo.es
Web Page: http://www.geocities.ws/sindromecriglernajjar/

  

THE CRIGLER-NAJJAR SYNDROME GROUP

List of parents, patients and healthcare providers, sharing common experiences about Crigler-Najjar syndrome type I and II.


GO TO THE CRIGLER-NAJJAR GROUP

GO TO THE CRIGLER-NAJJAR GROUP FOR KIDS


CRIGLER-NAJJAR on FACEBOOK
Crigler Najjar Syndrome - Pakistan: https://www.facebook.com/CNSPAKISTANAWARENESS/
Martin Crigler Najjar Chile: https://www.facebook.com/martincriglernajjar.chile 
Crigler Najjar EU: @CriglerNajjarUE
Crigler-Najjar: https://it-it.facebook.com/pages/category/Local-Business/sindrome-di-crigler-najjar-128554117164845/ 


on TwitterFollow @crigler_najjar
Follow @assoCN_ita
Follow: @friends_asso


THE CRIGLER-NAJJAR WORLD REGISTRY
A world registry of Crigler-Najjar patients has been established.

THE CRIGLER-NAJJAR SYNDROME PHOTO-ALBUM
Visit our photo-album

PERSONAL WEB PAGES:

The Carmaichel Family Web Page
Contains details on how to build a sit-up light unit for phototherapy.

Bobby, Brooke, Brianna and Brenden Page
A Crigler-Najjar family from Arizona.

Association KAMO
Webpage of a French Crigler-Najjar patient.

Numan's blog
Webpage of Crigler-Najjar patient from El Salvador.

Tosif and Madiha Page
How Tosif made a sit up light unit.